John Winston Clark
Stability With Knowledge

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The JWC Blog page is built to keep the conversations going. If you have a post you'd like to share with us, if you wish to share your PD story, trials, and tribulations please let us know! We are here to keep an active dialog with our visitors.

#StartAConversation  #JohnWClarkparkinsonsfoundation #PDSupport

Sailing with Parkinson's
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Sailing with Parkinson's

We all wish to sail through life in calm waters, making our way smoothly to destinations. Navigating life's ups and downs and moving with the ebb and flow of the tide. The ever changing seasons and currents sometimes pull us off course, and our direction is altered, but we continue to move forward. 

- John Winston Clark

Please visit johnwclark.org for more information about Parkinson’s Disease and please donate to gofundme.com/help-John-Clark

Thank You and God Bless!

#jwcparkinsonsfoundation #livingwithpd #johnwclark#followjohnsjourney

 
Clark RussellComment
Happy Mother's Day - May 13th, 2018'
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This is the first Mother’s Day without my beautiful Mother.

You were always the one I turned to when I needed unconditional love. I celebrate you everyday with every breath that you have given me. I love you, I remember you, and I celebrate you today. Wishing you and all the Mothers who have passed a Happy Mother’s Day. Mom, you are my “Guarding Angel” on earth and in heaven.

 
Clark RussellComment
Happy May!
 

This May we celebrate Mother’s Day on the 13th and Memorial Day on the 28th, 2018.

We think of those we have lost and those that we love. This Memorial Day we commemorate all the men and women who have died in military service for the United States. We visit cemeteries and memorials both traditionally seen as the start of the summer season. 

We encourage you to take a deep breath and to enjoy life as it is today. We remember, tell stories, laugh, and if we can embrace our Mothers with our loved ones. 

God Bless! 🙏🏻

 
Only On KRON4
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Good morning friends and followers! 

Today is the last day of #parkinsonawarenessmonth and we ask you to show your support by donating anything you can to John Winston Clark please visit www.gofundme.com/help-John-Clark thank you to all that have and God Bless! With your support John can continue with his treatments, help fund his documentary and educate the public and others suffering with this disease.

#kron4news #featuredstory #johnwclarkparkinsonsfoundation #cellman#GoBlue #StartAConversation #parkinsonsdisease #parkinsonsresearch#gofundmedonations #jwcparkinsonsfoundation #parkinsonsfoundation#parkinsonsawareness

Read more about John and his journey #livingwithparkinsons visit www.johnwclark.org

 
Clark RussellComment
Happy Friday! - Discussing Local Community Support
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April 27th, 2018

Happy Friday! 

Today we are talking about the importance of community support, friends, family, and caregivers. We know it takes an army to pull our lives around living with Parkinson’s disease and we are beyond thankful for those of you who truly support us as well as those suffering with this disease. 

You are not alone. We are not alone, and together we build a strong network of people!

Here is a local Parkinson Network for our town in Lafayette, Mt. Diablo. The mission is to improve the quality of life for people living with Parkinson’s disease in Contra Costa and Alameda Counties. They fulfill this mission through monthly support groups for PDers and caregivers; therapeutic yoga, exercise, and movement classes; monthly expert speakers on PD research and treatment; the Shaky Times monthly newsletter; the Tremble Clefs choral group; a weekly walking group; and an extensive library of books, journals, and pamphlets on PD.

Community Benefits / pnmd.net

Group Support meetings – Walnut Creek Branch at Grace Presbyterian Church. 2100 Tice Valley Blvd. Walnut Creek. 9:00 a.m. -12:00 p.m. on the third Saturday of every month. Meetings are geared to all those living with Parkinson’s. Programs consist of guest speakers, open discussion, and breakout support groups for men Parkinsonians, women Parkinsonians, and caregivers.

Group Support meetings – Pleasanton Branch. Our sister affiliate group.  Meets second Saturday of every month, 10:00 a.m. – 12:00 p.m. Meetings are at the Pleasanton Senior Center 5353 Sunol Blvd. Pleasanton. For more information or directions call Norman Bardsley 925-831-9940.

Shaky Times Monthly Newsletter – Free subscription to all members.

Lending Library – Check out helpful books regarding Parkinson’s and caregiving or take free booklets and pamphlets. Available at our monthly meetings.

Tremble Clefs: Meets on Thursdays. Singing and performing group. All are welcome – you don’t need to be a good singer to join. Call Michael Grupp at 925-451-3389.

Deep Brain Stimulation (DBS) Support Group – Call Art Fowler 925-314-1875.

Parkinson Exercise and Movement Classes – 

PD Boot Camp, Walnut Creek.  Mondays 9:30 to 11:00 at Grace Presbyterian Church’s Oak Room.  Price: $15 per class for mobile pders. Contact Murthy Jarugumilli via email at murthy.yt@gmail.com

Exercise Classes, Walnut Creek. Two separate classes of Therapeutic Yoga and Movement Strategies at Grace Presbyterian Church, 2100 Tice Valley Blvd. Fee $15 per class. Call RYT Carol Fisher at 925 566 4181. http://innerkeyyoga.com.   For mobile PDers:  Thursdays 9:30 – 10:45 a.m.

Dance Moves Me! for Parkinson’s: Tuesdays 1-2:30 pm, Congregation B’nai Tikvah, 25 Hillcroft Way, Walnut Creek. $10/class- no charge for care partners. www.dancemovesme.com - Debbie Sternbach (510) 653-8362

Rock Steady Boxing – East Bay: Fighting back against Parkinsons Disease. Monday through Saturday, offering 8 classes a week. 1990 Olivera Road, Suite D. Individual assessments must be completed prior to taking a class. Call Coach Jimmy at 925-785-1272 to schedule a personal assessment and to discuss payments plans.  www.rocksteadyboxingeastbay.com

These are just a few reasons we love our community!

Thank you and God Bless!

Please visit www.gofundme.com/help-John-Clark every little bit helps John continue his treatments, build his team of experts, and supports the “Cell Man” documentary. Education is key and with your help we can all make a difference fighting Parkinson’s disease.

#StartAConversation #JohnWClarkparkinsonsfoundation #gofundme #cellman #GoBlue

 
Clark RussellComment
Throw Back Thursday!
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April 26th, 2018

Good morning friends!

Sometimes it is great to throw back Thursday to a fun and special day with the family! This was a day we hired a van service to take our family to an A's game!!! We had a wonderful time and it was a beautiful day. A memory that John and our entire family will always treasure.

Take time to enjoy each other. Life is precious.

#StartAConversation #JohnWClarkparkinsonsfoundation #livingwithPD #cellman #parkinsonsawareness #tbt 

Don’t forget to visit John’s gofundme.com/help-John-Clark page every little bit helps!

Thank you and God Bless!

 
April is Parkinson's Awareness Month
 

April 24th, 2018

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Good afternoon friends and followers! 

NATIONAL PARKINSON'S AWARENESS MONTH

It's National Parkinson's Awareness Month. Share your story with your community and raise awareness. 

2018 Theme: Start a Conversation

The theme is “Start a Conversation,” a call to action that urges people to talk about Parkinson’swith their friends, family, neighbors, healthcare team, local businesses and community. It alsoreflects the speech bubble in the foundation’s signature P logo.

How You Can Get Involved!

Around Your Community

  • Petition your mayor or governor to declare April Parkinson’s Awareness Month. Use the Sample Proclamation provided and insert your local information in the placeholders to customize it for your town or state. Go online to find out how to contact your mayor orgovernor’s office, and/or call or email to inquire where to submit the proclamation. Afteryou’ve submitted the proclamation, follow up by email or phone to ensure it was received.

  • Submit a Letter to the Editor to your local paper. Customize the Letter to the Editortemplate provided and submit it to a local paper. The purpose of this short letter is to encourage members of your community to raise awareness about PD in April forParkinson’s Awareness Month. Your letter might mention specific events taking placearound the community.

    Local Events

  • Attending a programmatic or fundraising event? Show off your Parkinson’s P. Whenyou’re at an event, wear your temporary tattoo on your hand, your arm, your face oranywhere you’d like! Or, pick up a downloadable P (or print one at home and bring it with you).

  • Share photos of the P. Take photos capturing you and your care team, fellow advocates, Champions, friends or family sporting the temporary tattoos or printed logos. Post them to social media using the #StartAConversation hashtag or contact us so we can share them online.

 

 
April is Parkinson's Awareness Month
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April 23th, 2018

Good morning hope you enjoyed your weekend and are having a happy Monday so far! It was great seeing all the support and comments posted by those who watched the KRON4 News broadcast.

Variations on Stem Cell Research

In the past several years, there have been several studies that have claimed to end the debate on stem cell research. In an effort to appease both proponents and opponents of human embryonic stem cell research, scientists have developed ways to create cells that appear embryonic, yet they claim, are not. 

The excitement over stem cell research is unprecedented, and this creates fertile ground for exaggeration. Researchers, patient advocates, and politicians promise stem cell remedies for nearly every major health problem in the United States. And the promises come from both supporters and opponents of embryonic stem cell research. Supporters stress the advances possible through embryonic stem cells, while opponents emphasize potential therapeutic benefits from adult stem cells and other alternative sources.

Ethical considerations sometimes justify setting limits on scientific innovation. For example, there is nearly universal agreement that people should not be forced to participate in research, even though a coercive research policy could generate extremely valuable knowledge. Some people believe there should also be severe limits on research involving early human embryos, while others disagree. These are not disputes that science can settle. They are instead value conflicts to be expected in a pluralistic society like ours. In struggling with these conflicts, we should maintain respect for those holding differing views, and we should look for policies that are consistent with as many of those views as possible.

Advocates often portray stem cell research as presenting a choice between ending human life and saving human life. But the choices are much more complicated than that. Many ethical considerations are relevant to policy choices about stem cell research, but they often go unmentioned. Instead, the sound bite approach to stem cell research has produced a shrill and divisive policy climate. Fewer sound bites and an expanded ethical conversation could produce more defensible policy decisions about stem cell research.

Please don't forget to donate today so I may receive much needed medication and stem cell treatments to keep living in this life and so I may hopefully help prove the research the next Parkinson's patients will need as well visit; www.gofundme.com/help-John-Clark

Thank you and God Bless!

References; https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2941662/

 
STEM CELLS
 
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April 17th, 2018

Getting deeper today with our communication to the public about the controversial STEM CELL treatment for Parkinson's disease.

STEM CELLS

There are many different types of stem-cells which can be implanted in patients to regenerate or replace the damaged or abnormal cells caused by not only diseases like Parkinson's but also Alzheimer's and spinal cord injuries. A specific example in relation to Parkinson's is the harvesting of embryonic stem cells. These human embryonic stem cells can be transplanted into the brain to replace and create dopamine neurons. The controversy is in how one can obtain these stem cells. During fertilization, in humans, the embryo is hollow and contains cells that eventually develop into a fetus. Researchers have discovered, as recently as 1998, that the cells in the embryo contain all the tissues types, therefore becoming any cell in the body. Thus the stem cells can be transplanted into patients with diseases dealing with cell abnormality. 

THE POLITICS

Many religious groups argue that stem cell research should be discontinued by the federal government, because the killing of the embryos is just as heinous as abortion. Stem-cells are extracted from a few different sources, either from surplus embryos created for infertile couples, umbilical cords, and from elective abortions. For pro-lifers the embryos used to extract the stem cells are equal to human lives being destroyed. The other side of the argument is that embryonic cells are not living- they do not have a soul. Much of this debate is rooted and overlaps with the debate over whether abortion, of any form should be lawful. Scientists have also argued that many of the embryos used would have been destroyed at some point anyway, so why not use them for furthering the good of the human race. Consequently, political debate over whether federal funds should be used to support the further research of stem cell transplantation continues to this day. An example of the relevance and immediacy of this issue is the speech President Bush gave in the summer of 2001, in which he approved funding from the government on research of 64 human embryonic cells. 

 
Wearable Light Theraphy Technology
 

April 16th, 2018

Hoping you are having a great Monday so far!

Today we’d like you to review the new findings on WEARABLE LIGHT THERPY TECHNOLOGY, it’s very informative and sheds light on the subject “no pun intended!”

Thank you for your continued support and for following John’s posts, it truly means so much to know that there are others who suffer and because of the community and the continued support we all feel less alone in the battle against this debilitating disease.

Thank you and God Bless!

#StartAConversation #JohnWClarkparkinsonsfoundation

 
Diet & Nutrition
 
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April 15th, 2018

While there is no prescription for a PD-specific diet, to maintain overall good health most people living with Parkinson’s disease should eat a variety of whole grains, vegetables, fruits, milk and dairy products, and protein-rich foods such as meat and beans. Also consider including nuts, olive oil, fish and eggs to your diet, for their beneficial fats.

Please don't forget to donate www.gofundme.com/help-John-Clark

Thank you and God Bless!

 
April is Parkinson's Awareness Month
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April 14th, 2018

Good afternoon we hope you are enjoying the weekend!

Today we will talk about Medications for Parkinson's Disease. There have been many remarkable changes in treatments for Parkinson's disease in recent years. Scientists have developed new drugs, and they have a better understanding of how to use older treatments. That has made a big difference in everyday life for people with the disease.

Most people can get relief from their Parkinson’s symptoms with medicines. But some may need surgery if their medications stop working well enough.

The medicines you take early on have a strong impact on how your condition will unfold over time. So it’s important to work with a neurologist or other Parkinson’s specialist who can guide you through those treatment decisions.

Common Drugs for Parkinson's Disease

Levodopa and carbidopa (Sinemet). Levodopa (also called L-dopa) is the most commonly prescribed medicine for Parkinson’s. It’s also the best at controlling the symptoms of the condition, particularly slow movements and stiff, rigid body parts. Levodopa works when your brain cells change it into dopamine. That’s a chemical the brain uses to send signals that help you move your body. People with Parkinson’s don’t have enough dopamine in their brains to control their movements.

Sinemet is a mix of levodopa and another drug called carbidopa. Carbidopa makes the levodopa work better, so you can take less of it. That prevents many common side effects of levodopa, such as nausea, vomiting, and irregular heart rhythms.

Sinemet has the fewest short-term side effects, compared with other Parkinson’s medications. But it does raise your odds for some long-term problems, such as involuntary movements. People who take levodopa for 3-5 years may eventually have restlessness, confusion, or unusual movements within a few hours of taking the medicine. Changes in the amount or timing of your dose will usually prevent these side effects.

Safinamide (Xadago) is an add-on medicine that may be prescribed when individuals taking levdopoa and carbidopa have a breakthrough of Parkinson’s symptoms that were previously under control. Studies show that adding this drug helps individuals experience longer times with reduced or no symptoms. The most common side effects are trouble falling or staying asleep, nausea, falls, and uncontrolled, involuntary movements.

For more information and to read about other medical treatments visit https://www.webmd.com/parkinsons-dis…/guide/drug-treatments…

Please don't forget to donate www.gofundme.com/help-John-Clark

Thank you and God Bless!

 

 
Royalty Check
 
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April 12th, 2018

State earns first royalty check after investing billions in stem cell research

By Joaquin Palomino

California, which has poured billions of public dollars into studying stem cells over the past decade, recently received its first royalty check for the investment — a development that will feed into a debate over whether to spend more taxpayer funds on such research in the coming years.

Arpana Arjun works in the Panagiotakis Lab at Eli and Edy the Broad Center of Regeneration Medicine and Stem Cell Research at UCSF Parnassus Campus in San Francisco, Calif.

Photo: Scott Strazzante, The Chronicle Photo: Scott Strazzante, The Chronicle

To read more:

 

 
World Parkinson's Day
 
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Tonight at 8 p.m. ET, the Empire State Building in New York City will illuminate orange and white in honor of World Parkinson's Day. The lighting demonstrates the urgent need for a cure and our ongoing commitment to find one. Join us to end Parkinson's this April: https://www.gofundme.com/help-John-Clark
#johnwclarkparkinsonsfoundation 
#jwcparkinsonsfoundation
#johnwclarkorg
#johnwclark

 

 
Occupational Theraphy
 
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April 11th, 2018

Good morning Facebook friends and family!

Today we’d like to discuss “Occupational Therapy” as it is a way to improve lifestyle and minimize suffering when coping with Parkinson’s disease (PD). There is relief in knowing there are non invasive therapies out there that you or your caregiver can learn for free!*

Across the Parkinson’s Disease Continuum is an online course designed by Parkinson’s Occupational Therapy specialists to help other occupational therapists ensure best practice care for people living with PD. The course was designed by the Parkinson’s Foundation in collaboration with the American Occupational Therapy Association (AOTA) in 2015.

This four-module course provides practical, evidence-based knowledge across the continuum of Parkinson’s care (from diagnosis to advanced PD) to help occupational therapy practitioners evaluate and treat individuals in all settings — including in home care, community rehabilitation and long-term care practice settings.

The course is free. 

*Continuing education units are available on the American Occupational Therapy Association Learning Library for a fee. Presenters: Role of the Care Partner, Marilyn Phillips; Overview of Parkinson’s. Sotirios Parashos, MD., PhD, and Role of Occupational Therapy in Parkinson’s Care  
Erin Foster, OTD, MSCI, OTR/L. This course was designed and created in collaboration with the Parkinson's Foundation.

If you or someone you know would like to preview the course overview please let us know! You may also visit www.myaota.aota.org

Thank you and God Bless!

#StartAConversation #JohnWClarkparkinsonsfoundation

Visit GoFundMe.com/help-John-Clark

 

 
April is Parkinson's Awareness Month
 

April 10th, 2018

Good morning friends, 

As some of you already know this month is April and is Parkinson’s Awareness month. We are in search for the cure and also very proactive with the importance of education on the disease. Be sure to donate today as well as take the time to #StartAConversation#JohnWClarkparkinsonsfoundation

The more we communicate and share our stories the less in the dark we are. 

Here are the five most common stages:

Stage One

During this initial stage, the person has mild symptoms that generally do not interfere with daily activities. Tremor and other movement symptoms occur on one side of the body only. Changes in posture, walking and facial expressions occur.

Stage Two

Symptoms start getting worse. Tremor, rigidity and other movement symptoms affect both sides of the body. Walking problems and poor posture may be apparent. The person is still able to live alone, but daily tasks are more difficult and lengthy.

Stage Three

Considered mid-stage, loss of balance and slowness of movements are hallmarks. Falls are more common. The person is still fully independent, but symptoms significantly impair activities such as dressing and eating.

Stage Four

At this point, symptoms are severe and limiting. It’s possible to stand without assistance, but movement may require a walker. The person needs help with activities of daily living and is unable to live alone.

Stage Five

This is the most advanced and debilitating stage. Stiffness in the legs may make it impossible to stand or walk. The person requires a wheelchair or is bedridden. Around-the-clock nursing care is required for all activities. The person may experience hallucinations and delusions. The Parkinson’s community acknowledges that there are many important non-motor symptoms as well as motor symptoms.

Visit gofundme.com/help-John-Clark

Thank you and God Bless! 

 

 
April is Parkinson's Awareness Month
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April 9th, 2018

#StartAConversation #JohnWClarkparkinsonfoundation

Good morning on this beautiful Monday! 

This week we are going to touch on a few heavy topics in hopes that we may get a conversation started. It’s important to know that PD effects each person a little differently so if you or a loved one does not experience these symptoms that is fantastic... we just want you to be aware and hopefully feel comfort in starting conversations to better understand what will, can, and might happen during the course of Parkinson’s.

HOW TO GET HELP

Getting help starts with having a conversation.

Whether you’re a caregiver or a person living with Parkinson’s, getting help starts with having these open conversation.

• What is happening to the body?
• What will you need to do to prepare for this?
• How to cope with these life changes?
• tremors
• speech
• thought process
• health
• motor skills
• mobility
• hygiene
• hallucinations
• delusions
• sleep

Let’s discuss the latter... hallucinations and delusions. Yes, it is very likely that as Parkinson’s progresses you can experience hallucinations and delusions related to Parkinson’s. Although it can be difficult, talking to a Parkinson’s specialist—and each other—about what you’re experiencing is an important first step.

TALKING TO YOUR LOVED ONE

If you are a caregiver for someone with Parkinson’s, it’s important to talk about what you are observing. Your loved one may find it difficult to share these experiences—or you might find that in these discussions with the person with Parkinson’s doesn’t realize these experiences aren’t real. Once you can come to terms with this it’s time to talk with a specialist.

TALKING TO A PARKINSON’S SPECIALIST

A Parkinson’s specialist can help you determine if there are treatment options, such as counseling and/or medication, that are right for you or your loved one. But they may be waiting for you to start the conversation.

For more info visit www.moretoparkinsons.com and to find a specialist near you visit www.partnersinparkinsons.org

Please also visit gofundme.com/Help-John-Clark anything you donate will provide John with further medical treatments and stem cell treatments. 

Thank you and God Bless!